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We went to Cincinnati just for a quick visit for Dr. P (his GI) to see him as he will be out of town 3 weeks next month so it would be too long between checkups–they usually try to coordinate visits with other doctors. His weight is holding well on the same TPN volume doing it every other day, so that is great news as we really like having “off nights” with no hookup. His potassium was low so he is going to adjust that and retest after a couple weeks. We also discussed the central line as Michael’s local hematologist who will be coordinating all his care now was 100% for the central line. He recommended Dr. Ryckman there because he is the doctor who closed up an old, scarred up feeding tube site this year–we really liked him and found him very gracious and compassionate. Dr. P said he has had recent conversations with Dr. R about the central line and even about his rib cage (Dr. R is a general and thoracic surgeon), so I contacted their office today to get the ball rolling on that. We will be having a BMB done at the same time to make use of the sedation as obviously we want to sedate him as little as possible.
His bloodwork from Monday continued its ever creeping down:
Platelets: 24,000 (all time low I believe, again, just watching for now)
White Cells: 1.8 (this is low for him on GCSF)
ANC: 1200 (above 1000, so just going to watch the next one)
HGB: 10.5 (will transfuse under 10)
I will post when we have a date on the central line/BMB, other than that, I believe our next trip will be in November to see Dr. H and Dr. P and meet up with Sue, Dee, and Clarke from New Orleans 
