We did (are finishing) Michael’s fourth dose of IVIG today at the hospital and so far so good. He hasn’t gotten a headache yet like he did last dose. They did, however, redo his labs as the ones in Cincinnati were so low and he’s had three doses of the higher GCSF shots. Good news, his white count went up to 4.9 and his anc to 3.9 (absolute neutrophils are the part of the white cells that are really doing the work and that we watch the closest), his platelets were worse, but that seems par for the course the last few months. His lymphocytes are the lowest they have been since I started tracking it all in September, they are the brains of the white blood cell line and not affected by the shots he gets. Still, all in all we were hoping for a better ANC and at least the higher dose worked! Not so good news, he lost 1.5 pounds from last month–not a lot for most people, for him, no good. I’m glad we’re getting the IV nutrition started next week.
We had thought we would be zipping back this week but the coordinator called yesterday and the earliest she could get him scheduled was next Wednesday, so we’ll be heading up Tuesday to spend the night and head in early that morning if I can’t shift it later in the day and just drive right in…or I’ll hit the road at 3am, but that doesn’t sound like a good idea as it’ll just be him and I.


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